The Project is creating an online community where children with rare diseases, their families, and the organizations that support them will have the opportunity to communicate, collaborate, become educated and tap existing resources, helping them with their daily challenges.
Children and their families need information, resources and a coherent voice to speak to issues common to children who suffer from a rare disease. The Network will seek to work collaboratively with other organizations and raise the profile of the problems faced by people with rare diseases so that more funding can be directed into this area of great need.
“Families touched by rare childhood diseases are often completely immersed in the care of their child,” said Nicole Boice, founder and chief executive officer of The Project. “We are excited that Inside Assisted Living has provided an opportunity to increase our fundraising while at the same time provide much needed assistance to our families concerned with elder care.”
Obviously, if you have interest in The Project, please do give them a visit.